For the first time, Colin Farrell has opened up his home and talked in-depth about life with his son James, who has Angelman syndrome. James was just a toddler when he was diagnosed with the rare ...

Actor Colin Farrell recently disclosed that his son, James, has Angelman syndrome, one of the driving factors behind Farrell's support for finding a cure for Angelman syndrome and for launching the ...

This post was updated on April 24, 2019 to incorporate feedback from parents. Names have been changed to protect anonymity. Is this child happy? Source: Joel Frohlich (AI generated with Midjourney) ...

Mothers are often encouraged to trust their instincts, especially regarding their children's health. But for Tiffany Young, getting others to take her concerns seriously proved challenging when her ...

International Angelman Day also marks the birthday of Dr. Harry Angelman, the British pediatrician who first identified the ...

Henry Edberg dug through the play kitchen at his home in Rosemount before serving up the daily special to his older brother. “Vegetables are healthy, so I’m giving you the vegetables,” Henry, 3, told ...

About two years ago, Midland resident Felicia Warner was sent a YouTube video from a friend that showed a child with Angelman Syndrome, a rare genetic disorder. The friend sent this video because it ...

An Ionis Pharmaceuticals drug in development for Angelman syndrome has mid-stage clinical trial results showing improvement across a range of measures of this rare neurodevelopmental disorder, and the ...

Families of children with rare diseases will often start non-profit organizations to raise money for early-stage research on their child's condition. Fewer of those organizations start their own ...

MIDDLETON, Mass., Nov. 6, 2025 /PRNewswire/ -- MavriX Bio, a clinical-stage biotechnology company focused on the development of transformative genetic therapies for Angelman syndrome (AS), today ...

William Edberg smiles as he takes a a bite of his favorite meal, macaroni and cheese, on Saturday, Feb. 4, 2023, in his Rosemount, Minnesota, home. Born with Angelman syndrome, a rare neurogenetic ...